The Organization Assistance section provides links to resources that will assist cancer patients and their loved ones in the day-to-day management of life with cancer. Things like updating loved ones, keeping track of medications and appointments and performing daily household chores can be overwhelming at times. The following resources will help you stay on top of these tasks.
CaringBridge.org allows you to create a personal and private website that helps ease the burden of keeping family and friends informed. The websites are easy to create and use. Authors add health updates and photos to share their story while visitors leave messages of love and support in the guestbook. Also available as an iPhone App.
MyLifeLine.org allows you to share information on your terms via your own personal website. You can update friends and family, receive caring messages from loved ones, search their directory for resources, create a helping calendar to post doctor appointments, babysitting needs, etc., post photos, and read funny stories and inspirational quotes.
CarePages.com allows users to share the challenges, hopes and triumphs of facing a life-changing health event. Through personalized websites, members can relate their stories, post photos and update friends and family. In turn, people who care send messages of love and encouragement. CarePages.com also offers a variety of resources and support tools for living a more compassionate life.
Navigating Cancer offers cancer patients and their support network free care management tools and personalized resources to improve their care and quality of life during treatment. Patients and their caregivers can use the Daily Health Journal to track symptoms and side effects to better communicate with their health care team about how they’re responding to treatment.
MyMedSchedule.com is a free website that will help you build personalized medication schedules. It is simple to create a clear, personal chart to help you remember when to take your medications. Other features include email or text alerts and prescription refill reminders. Now MyMedSchedule includes My Health Trackerand lets you record all your lab results and vital signs.
LotsaHelpingHands.com allows for the creation of a private, web-based community for organizing friends, family, and colleagues – your ‘circles of community’ – during times of need. Easily coordinate activities and manage volunteers with their intuitive group calendar. If you are looking for ways to help a friend or loved one, you can create a private community to: organize well-meaning offers of help for meals delivery, rides and visits; easily communicate and share updates; and safely store vital information.
FoodTidings.com simplifies the process of organizing meals for friends or family members in need by communicating the dates meals are needed, showing people what meals are being delivered and providing details about likes, dislikes, allergies, delivery times, etc.
TakeThemAMeal.com is a free online tool designed to coordinate the delivery of meals to someone who is in need. A meal coordinator is able to set up a private TakeThemAMeal.com account to make it easy for friends and family to sign up to bring meals. A customized online sign-up sheet that includes phone numbers, driving directions, food allergies, and any other helpful details can be created in a just a few minutes.
CANCER101.org provides Cancer101 Planners to cancer centers in all 50 states to give to patients and caregivers in need. The planners include essential organizational tools and important resources designed to empower you to take control from the moment of diagnosis through the next ten years of follow-up care. If your cancer center does not provide you with a Cancer101 Planner, you can order one at Cancer101.org.
Stepping Stone Journals are written and designed with input from cancer survivors, medical providers, and devoted caretakers. The journal allows you to record and track vital information regarding your medical history and appointments, treatment, symptoms, contact information, etc. The journal can be ordered at SteppingStoneJournals.com.
American Cancer Society
The American Cancer Society provides a lively source of news, information, and support. The contact number is (800) ACS-2345.
Blood and Marrow Transplant Information Network
Dedicated to serving the needs of persons facing a bone morrow, blood stem cell, or umbilical cord transplant. Provides medical information in easy to understand language; publishes patient guides and maintains a support network of transplant survivors. Call (888) 597-7674.
Help in finding the answers to your questions about cancer, and especially in finding the questions you need to ask.
National Cancer Institute
Free resources and educational materials on all cancer types. Call 1-(800) 4-Cancer.
The University of Pennsylvania’s Cancer Center website provides readers with comprehensive information about specific types of cancer, updates on cancer treatments, and news about research advances.
This is a Nationwide network of organizations and individuals serving all people who have been struck by cancer. The phone connection is (877) NCCS-YES.
General Information – Cancer Specialists to answer questions 800-227-2345